Hey guys :)
So I should have started this a long time ago, but I am just now able to talk about it without being so upset and wanting to break down all the time.
On April the 23rd Marc and I found out we were expecting a lil boy :) Marc was estatic! I cried cause I wanted a lil girl so bad but Im happy with my lil boy :) So we left the hospital went and shared the news with his family while I called mine up and let them know. We headed home a few hours later and I got a call from my OBs office. She said I need you to come in today the doctor wants to talk to you about your ultrasound, Marc was like we cant cause I have to be at work in 30 min. So I made an appt to see my OB on the following Tuesday. Well we get home, Marc gets ready for work and leaves. not 30 min later I get a phone call from my OB, She said I have some bad news, I was like ok....I didnt think she would actually tell me over the phone, but she did. She said "Your baby has something called Congenital Diaphragmatic Hernia. Do you know what that is?" I had never heard of anything like it so of course I replied Im sorry never heard of it. She said it basically means your baby has a hole in his diaphram and his stomach and intestines are in the chest cavity. Then she told me not to worry that he would be fine. Well it didnt sound fine to me so I thanked her and hung up.
Im in tears now, sobbing. I call Marc, No answer. His phone had died :( I was sooo upset! So I called my mama (Thank God for Mamas) and she was like calm down I cant understand you. So I took a deep breath and told her what my doc told me. Mama said hang up and call Daddy so I did. I called Daddy and told him he started praying ( Thank God for the best prayer warrior in my life), he said I need to be calm and that I have been through worse things before. So I called mama back. She asked did Marc know I was like no maam his phone is dead so she said call his job. I did thankfully his boss Jason answered. Unfortunatly Marc wasnt at work yet. He said Ill have him call you ASAP. Are you ok? ( I wsa tryin to sound ok, guess it didnt work) I said yes sir, just need to talk to him as soon as he gets in. So I call mama and talk to her again and she suggested I research. So i started doin some research. I found an awesome support group called CHERUBS. http://www.cdhsupport.org/ They are amazing people that I truly appreciate them being there all the way through this journey.
For those of you who dont know what CDH is here is an explanation:
CDH occurs in approximently 1 in every 2,500 births . The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and it controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Survival rates depends on the types and numbers of organs involved in the herniation and the amount of lung tissue available. Roughly 50% of cdh babies do not survive.
So we have been goin to a specialist who has been totally awesome and supportive. We have had some days with bad news and some days with great news. The latest news is that The fluid that was built up around the stomach is completely gone, the liver is completely down, and they are starting to see a lil growth with the left lung. They said he was doing so well that instead of 2 BPP a week we will now be only doin 1! :) We are super happy.
Thank you to all the friends and family members that have been keeping us in your prayers!
Hope I didnt bore you :)
I hope to keep this updated through out his whole journey, and i hope to post pics of him when hes born :)
God Bless to all
Hugs
Jess*
Jessi, I do not know you that well, but I am in tears as I read this. I did not realize you were going through this in your pregnancy and what a testament to your faith in God that is in itself. To be so scared for your unborn child but still be uplifting in your words! We will be praying for you and your family. I listened as a Dr. told me my Father had died for 20 minutes, miraculously came back, but would probably be brain dead. My dad is officiating at a wedding tomorrow and is fully recovered!! so I know God can do anything!! I am claiming that your baby boy will be born completely healthy in Jesus name! Love & Prayer - The Puckett Family
ReplyDeleteSo glad you found CHERUBS! They have been a God send for my daughter & I as we walked through my grandson's CDH journey.
ReplyDeleteStay strong in faith & may you find comfort, peace & strength in the days ahead!
Praying for a smooth delivery & a strong fighting little boy!
Shelly M.
Grandma to CDH angel Jayden & CHD survivor K.
Psalm 46:1-3
ReplyDelete" God is our refuge and strength, a very present help in trouble. 2 Therefore will not we fear , though the earth be removed , and though the mountains be carried into the midst of the sea; 3 Though the waters thereof roar and be troubled , though the mountains shake with the swelling thereof."
3/31/10 we found out that our baby had a LCDH (ironically, later I found out that date is CDH awareness day) and I know how your heart is so heavy with fear and uncertaintly. I pray that God will give you the peace that he gave me for the majority of my pregnancy. God is good and faithful and we can trust in him. I will be praying for your family and for your precious baby. If you have any questions - feel free to email me anytime.
My only advice would be - Don't go and read stories of the Angels - all it does is destroy your spirit and allows fear to take over.
2 Timothy 1:7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.
Jessi, thank you for allowing Cherubs to help give you support through a hard time in your life. I want you to know that I am here for you and I am only 30 min. away from Texas Children so if you need me call me!!! I will keep on praying that God will make a miracle with this baby like he did with Natalie. Stay strong and positive!!! Please keep us posted!!!
ReplyDeleteMy husband and I were told that our unborn baby had CDH almost 2 years ago at a routine sonogram. Today, after almost 3 months in the NICU and a rollercoaster ride we never could have imagined, our Charlie is an amazing almost 19 month old, incredibly active and NORMAL little boy. Have faith and stay strong. This will not be easy, but miracles do happen!
ReplyDeleteMuch love and prayers, Patty D'Angelo
mom to Charlie, LCDH survivor, 2/4/09